We have some updated totals from Daily Dose Day 2018!
Daily Dose Day 2018 totals
Thanks to your generosity:
The Merlin Project are currently $844.90 better off, plus $163.60 Gift Aid
The ALS Association (DC, MD and VA Chapter) have received $979.83 from you.
That makes a grand total of $1824.73, plus $163.60 Gift Aid from the UK government. Altogether: $1988.33!
Once again, thank you all so much for your kindness and donations. Downloads from that day are still available at DailyDoseDay.com, and of course the concert that Bruce gave us from Grand Rapids, MI up for download here on Bruuuce.com.
You can still donate if you’d like to! Both pages are still open:
Donate to the Merlin Project for Multiple Sclerosis care
The ALS Association
The ALS Association is a leading nonprofit organisation in the United States focused on supporting individuals affected by amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Established in 1985, the association’s mission is to discover treatments and a cure for ALS, while also improving the quality of life for people living with the disease and their families. ALS is a devastating neurodegenerative disorder that gradually causes the loss of voluntary muscle control, leading to paralysis, difficulties in speech and swallowing, and eventually respiratory failure. While the disease is rare, it is invariably fatal, and most individuals live only three to five years following diagnosis.
The ALS Association plays a vital role in providing support and resources to patients and caregivers. Their services include medical equipment loans, in-home care assistance, and access to support groups. They also offer guidance on navigating the complex healthcare system, helping patients manage the physical, emotional, and financial toll of the disease.
In addition to patient care, the ALS Association is heavily involved in research. The organisation funds cutting-edge scientific initiatives aimed at understanding the causes of ALS, improving diagnostic methods, and developing new treatments. One of its most high-profile fundraising efforts came with the viral “ALS Ice Bucket Challenge” in 2014. The campaign raised over $115 million in donations, which significantly boosted research funding and led to advancements such as the discovery of the NEK1 gene, associated with ALS.
The ALS Association also engages in public policy and advocacy efforts, working with lawmakers to secure funding for ALS research and expand access to healthcare services for those affected by the disease. Through its comprehensive approach—offering support, advancing research, and driving public policy—the ALS Association continues to be a crucial force in the fight against ALS.